Universal Data Collection and Serum Specimen Collection System
Record Type
DataSet
Source
Centers for Disease Control and Prevention (CDC)
Title Acronym
UDC
Source URL
Description
The purpose is to collect prospective clinical data on persons with hemophilia and other bleeding disorders in the U.S. who receive at least some of their care from federally sponsored hemophilia treatment centers. Surveillance data are collected by medical care providers once per year at the time of the clinical visit.
MEDLINE Search Strategy
Method/Technique
Methods of data collection for this system include: medical record abstraction Data are originally collected by: Federal treatment centers Data are collected weekly.
Special Notes
Race and/or Ethnicity data available. This list above is a tabulation of those listed as "Other" on the surveillance forms. These are self descriptions by the participants and are non-standardized categories. Often mixed combinations, i.e., Chinese-Hispanic-German-French, these can not be placed in the standardized CDC classifications.
UI
1296
Date Revised
June 2, 2018, 10:32 a.m.