DataSet

National Institutes of Health (NIH)

PROMIS

The PROMIS initiative will: develop item pools and core questionnaires that measure key health outcome domains that are manifested in a variety of chronic diseases. The item pools will consist of existing items from established questionnaires and new items written by experts and tested in patient populations. All items considered for inclusion in the PROMIS item banks will undergo rigorous qualitative and cognitive review and quantitative review when possible; establish and administer the PROMIS core questionnaire in paper and electronic forms to a large sample of individuals suffering from a variety of chronic diseases; analyze and use collected data to calibrate the item sets to build the PROMIS item banks; build an electronic Web-based resource for administering computerized adaptive tests, collecting self-report data, and reporting instant health assessments; conduct feasibility studies to evaluate the utility of PROMIS and promote widespread use of the instrument for clinical research and clinical care; support both independent and network-wide research projects that will benefit PROMIS; develop a plan to establish a public-private partnership to sustain the repository, ensure scientific excellence, improve future data collection activities, add new domains and items to the system, test and adapt the system for new populations, maintain the system in the public domain, and extend the application of the system for clinical research and practice.

Health Surveys; National Institutes of Health (U.S.); Outcome Assessment (Health Care); Psychometrics; Quality of Life; Questionnaires; Research Design; Patient-Reported Outcomes; Patient Reported Outcomes; PROs

A wide range of different populations will be represented in studies conducted by the six primary research sites. Included will be individuals from the general population, general medical patients, and patients with cardiovascular disease, arthritis, and cancer.

The NIH Roadmap is a series of far-reaching initiatives designed to transform the Nation's medical research capabilities and speed the movement of research discoveries from the bench to the bedside. It provides a framework of the priorities NIH must address to optimize its entire research portfolio, and it lays out a vision for a more efficient and productive system of medical research.

Sheps Center, UNC-CH

1972