DataSet

USRDS Coordinating Center

USRDS

The USRDS has a primary objective of making data available to the renal community. One of the important means of making data available is through timely response to data requests made by researchers, practitioners, and other members of the renal community. In many cases these requests can be answered by providing data published in the Annual Data Report (ADR) or elsewhere. Requests for data not available in the Annual Data Reports, but that would require 2 hours or less of computer programmer/analyst time, can be provided by the Coordinating Center. Due to the limited resources available for filling data requests that require a computer run, such requests must be made in writing (by e-mail, fax, or classic mail). These requests will be completed as resources allow. The USRDS does not provide medical advice or comment on the current treatments prescribed by physicians. We urge those individuals that are seeking this type of information to consult with a qualified physician. Requests that require more than 2 hours of computer programmer/analyst time will be undertaken only upon written approval by the NIDDK Project Officer. Research needs that cannot be met by the ADR or by 2-hour data requests probably can be met by obtaining the Standard Analysis Files or custom data files.

Kidney Failure; Chronic; Registries; Renal Dialysis; Social Determinants of Health

The United States Renal Data System (USRDS) is a national data system that collects, analyzes, and distributes information about end-stage renal disease (ESRD) in the United States. The USRDS is funded directly by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) in conjunction with the Centers for Medicare & Medicaid Services (CMS). USRDS staff collaborates with members of CMS, the United Network for Organ Sharing (UNOS), and the ESRD networks, sharing datasets and actively working to improve the accuracy of ESRD patient information.

ESRD incidence, prevalence, patient demographics/ characteristics and treatment modalities; data regarding clinical indicators and preventive care, hospitalization, survival and costs

Sheps Center, UNC-CH

Compendium of Publicly Available Datasets and Other Data-Related Resources. The National Partnership for Action to End Health Disparities has compiled a Compendium of Publicly Available Datasets and Other Data-Related Resources (Compendium). This free resource details publicly available data relevant to research and programs aiming to reduce health disparities. The Compendium compiles in one place descriptions of and links to public datasets and resources that include information about health conditions and other factors that impact the health of minority populations. https://www.minorityhealth.hhs.gov/NPA/Materials/FIHET_Data_Compendium_508_version_FINAL_11_28_2016.pdf

ESRD Patients; Treatment History; Payor History; Transplant Process & Outcomes; Morbidity & Hospitalization; Survival & Mortality; Providers; Disease-Based Cohort

2017