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  Research Patient Data Registry

Record Type

DataSet

Source

Partners Research Computing

Title Acronym

RPDR

Description

The RPDR has two related but separate functions. First, an online Query Tool provides users with aggregate numbers of patients with user-defined characteristics such as diagnoses, procedures and/or laboratory results. Patient identifiers are not available at this function level. Secondly, the RPDR Data Acquisition Engine (DAE) allows the user to receive more detailed medical record information about the queried patients.

MEDLINE Search Strategy

Keywords

Forms and Records Control; Information Storage and Retrieval; Massachusetts; Medical Record Linkage; Medical Records Systems; Computerized; Natural Language Processing; Pattern Recognition; Automated; Registries

Purpose

The Research Patient Data Registry (RPDR) is a centralized clinical data registry, or data warehouse. The RPDR gathers data from various hospital legacy systems and stores it in one place. Researchers access this data using the RPDR online Query Tool. They may query the RPDR data for aggregate totals and, with proper IRB approval, obtain medical record data. The RPDR brings clinical information to the researcher's fingertips and ensures the security of patient information by controlling and auditing the distribution of patient data within the guidelines of the IRB and with the use of several built-in, automated security measures.

Record Originator

InfoPac

Restrictions

BWH and MGH faculty are eligible to become Faculty Sponsors and to create Workgroups. Eligibility of Faculty Sponsors is determined during RPDR registration. Sign-on to the application requires that the system recognize the Partners logon and password of the confirmed user. The Faculty Sponsor may access the RPDR Query Tool from among the Partners’ applications via the Start windows command. Faculty Sponsors may utilize the Query Tool themselves and/or add Workgroup members from their research teams.

UI

2179

Date Revised

July 21, 2017, 3:38 a.m.