DataSet

United Network for Organ Sharing

UNOS

Under contract with HRSA, the United Network of Organ Sharing (UNOS) has operated the Organ Procurement and Transplantation Network (OPTN) since 1986 and operated the Scientific Registry of Transplant Recipients (SRTR) from 1987 until 2000. Prior to September 2000, both OPTN and SRTR were involved in data collection; OPTN collected pre-transplant data, and SRTR collected post-transplant data. Since September 2000, the OPTN contractor has collected all transplant data. The data in its entirety is provided to the SRTR contractor, the University Renal Research and Education Association. The OPTN and SRTR contractors collaborate and share data to support important policy issues in organ transplantation. The data collected and analyzed include information on cadaveric and living donor characteristics, survival rates, waiting lists and organ disposition. Data are provided by transplant programs, histocompatibility laboratorie, and organ procurement organizations throughout the United States.

Health Care Costs; Health Care Rationing; Heart Transplantation; Patient Selection; Tissue and Organ Procurement; Waiting Lists; Social Determinants of Health

When a patient is “added to the list,” a transplant hospital adds a patient’s medical information into UNOS’ computer system. When a deceased organ donor is identified, UNOS’ computer system generates a ranked list of transplant candidates, or “matches”, based on blood type, tissue type, medical urgency, waiting time, expected benefit, geography and other medical criteria.

InfoPac

Compendium of Publicly Available Datasets and Other Data-Related Resources. The National Partnership for Action to End Health Disparities has compiled a Compendium of Publicly Available Datasets and Other Data-Related Resources (Compendium). This free resource details publicly available data relevant to research and programs aiming to reduce health disparities. The Compendium compiles in one place descriptions of and links to public datasets and resources that include information about health conditions and other factors that impact the health of minority populations. https://www.minorityhealth.hhs.gov/NPA/Materials/FIHET_Data_Compendium_508_version_FINAL_11_28_2016.pdf

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